Major fundraising campaign underway to help son of a Tulsk native get treatment he urgently needs in Boston….
Jamie Mannion (7), son of Declan Mannion (a native of Rathfudagh, Tulsk) and Siobhan Ryan, has a severe intellectual disability and global developmental delay with the developmental level of a 10-12-month-old baby.
Devastatingly, Jamie was also diagnosed with focal epilepsy a year ago, which has brought its own complications. He requires intensive therapy sessions that are only available through the Neuroplasticity Napa Centre in Boston.
Jamie’s father, Declan, is originally from Tulsk. Declan’s parents/Jamie’s grandparents, Johnny & Lily Mannion, now live at St. Patrick Street in Castlerea.
Jamie’s mum, Siobhan, has been working with the centre to prepare Jamie for his treatment. This pioneering treatment is expensive and Jamie’s parents need to raise €50,000. This treatment will help Jamie walk and improve his quality of life.
One of the local fundraisers being organised is by Declan Mannion’s cousin, Breda Durr (nee Cahill), from Hermitage, Ballinagare. Breda and her cycling buddy Brian Farrell have decided to fund-raise by doing a ‘CYCLE-CLIMB-CYCLE’ event on August 2nd. They will be departing from Tulsk at 4.30 am and cycling to Murrisk, Co. Mayo. There they will climb Croagh Patrick, before returning on their journey home to the maroon and white of Tulsk. The total cycle is 220km and a 7km climb (2500 ft.). Jamie’s family also has a Go Fund Me page set up; to donate to this fundraiser, log on to Gofundme.com/cycle-climb-cycle 4jamie (all support greatly appreciated).